Kids vs Treatment

Hello MS mommies!

Last week I had a thoracic MRI and today is was cervical and brain. A few weeks ago, it was blood tests and my monthly dosage of Kesimpta. I realized that I needed a medication that would better fit my mom schedule so I switched from Ocrevus. I also had a neurology appointment three weeks ago and my doctor recommended daily physical exercise and cognitive exercises. This all sounds like a lot, probably because it is!

On top of the care and keeping of myself, we had birthday parties, gymnastics, early release, days off school, class photos, valentines exchanges, home work, spirit day, parent lunch, grandparents day and a field trip. This doesn't include the daily waking everyone up and getting ready for the day, lunches, drop off, carline pickup, dinner, laundry, groceries, vacuuming and every day cleaning.

Well, a common side effect of MS (as you all know) is fatigue. Somewhere in the mess of caring for everyone else and managing your own health, it is recommended that you take breaks. I literally laughed when my physician said this. Let me get out my planner and pencil it in! Maybe I can cross off the bathroom break around 1:00...

My blog question: What do you do to help reduce fatigue during your hectic mommy schedule? And what does your schedule look like?

Comments

Welcome To My Blog!

Hello fellow moms! This is my first attempt at doing a blog so bare with me! I was listening to a Podcast by " Tripping On Air " and she suggested another MSer (I'm making this a word if it's not already!) who is a mom open up a space for other moms to connect as a resource. I would love for this space to be a place where we can all connect, ask questions or make comments. Being a mom is already hard enough without the daily issues of MS, so let's be in this together! Here is my back ground- I was diagnosed with MS in September of 2020. It was horrible timing and good timing for me because I was already isolating with COVID. I went into a very sad state of mind and this time allowed me to really get a grip with my new reality. I was immediately put onto Ocrevus because my brain was lighting up like a Christmas tree. My left leg was numb and it felt like I had the worst frostbite. I live in south Florida, so this clearly wasn't the issue! Overwhelming thoughts

Mom Break

I don't want to do a depressing post because that's not who I am but being a MS Warrior Mommy has been challenging the last three days. I pushed myself this weekend and am paying for it now. I try to press forward every day and ignore the leg pain and numbness but it's been hard. School drop off, pick up, gymnastics, playground trips, house cleaning and daily activities are all monumental tasks this week. I'm going against my usual self and taking a break today. There is still tons of laundry, toys everywhere, groceries to be bought but I'm taking a pause today while the kids are in school. Sometimes moms need a break.

MS Warrior Mommy

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